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Jadon's Infantile Spasms Story
I created this blog so that our friends and family will be able to follow Jadon as he fights to overcome Infantile Spasms. I also hope that if anyone else is going through this, they will find this site helpful. I have posted a video of what infantile spasms look like, as well as everything we are going through. I hope by posting this I am able to get help for other children who are having these spasms. The earlier this is diagnosed the better. Feel free to leave me comments. I love to hear from you. If you have any questions just email my mommy. She likes to help people in any way she can.
Wednesday, January 11, 2012
A quick update
I'm doing really well. My daddy stayed with me last night and I slept through the night. I'm very content and enjoying not having seizures. The doctors said that it's great that I'm moving my right leg already. It means the transfer of motor function started before surgery. Now the rest has to transfer. Please pray that my motor function will transfer to it's maximum potential, that I will have no seizures , and that I will not need a shunt. Also pray for a speedy recovery. I do have thrush in my mouth but they gave me some medicine for that and I'm better. The next few weeks are very important and we will know more of the total outcome each day. Of course EEG is the only thing that can prove no seizures but we will not do one for a while. I need to heal right now because I'm very weak. So far I'm doing great and we are not seeing any visible seizures. Your prayers are helping so keep them coming. Love you all, Jadon