Sent from my iPhoner
Jadon's Infantile Spasms Story
I created this blog so that our friends and family will be able to follow Jadon as he fights to overcome Infantile Spasms. I also hope that if anyone else is going through this, they will find this site helpful. I have posted a video of what infantile spasms look like, as well as everything we are going through. I hope by posting this I am able to get help for other children who are having these spasms. The earlier this is diagnosed the better. Feel free to leave me comments. I love to hear from you. If you have any questions just email my mommy. She likes to help people in any way she can.
Wednesday, January 18, 2012
We are coming home!!!
I was discharged from the hospital late yesterday evening. By the time we got to the hotel it was too late to blog. I really enjoyed sleeping in the hotel bed. It was much better than the hospital. I got to sleep by my brother. He stayed right by me all night and played with me this morning. We managed to get to the airport this morning with all our bags. We got a wheelchair and it has helped alot. I'm still so weak. So yes we are at the airport in Detroit waiting for our flight!!! When we get to NOLA I will have to go straight to children's for therapy. We were hoping to get to go home for a night or two but because of insurance reason we have to go straight there. We will be there anywhere from one to two weeks. If my anxiety level doesn't get better we are going to come home and do therapy in my home where I'm more comfortable. So we will see how I do. Please pray for safe travels.
Subscribe to:
Post Comments (Atom)
5 comments:
Great News! PRAISE GOD!!!!!
Thank God! Great news and praying for your continuing progress!
continued prayers for safe travel and easy transition to therapy!! GOD IS GREAT!!
Praise God. I can't wait to see you.
Love,
Hope
so glad that you can travel and play. After my surgery, I had to lay flat on my back in bed with soft pillows and blankets for weeks until the skull grew back together. My head was very heavy and I only weighed maybe 20 pounds.I was tall and very slim.About 10 years ago I had a catscan and the doctors thought that the machine was broken. they could not see anything! then I remembered about the surgery. Take care and here's to your continued success.
Post a Comment