Jadon's Infantile Spasms Story

I created this blog so that our friends and family will be able to follow Jadon as he fights to overcome Infantile Spasms. I also hope that if anyone else is going through this, they will find this site helpful. I have posted a video of what infantile spasms look like, as well as everything we are going through. I hope by posting this I am able to get help for other children who are having these spasms. The earlier this is diagnosed the better. Feel free to leave me comments. I love to hear from you. If you have any questions just email my mommy. She likes to help people in any way she can.

Friday, January 13, 2012

More Great News :)



I am still doing really well. I'm eating and drinking. Since I'm doing this they turned my IV liquids down. I'm taking my pain medicine by mouth only and doing great with that. They were able to take one of my drainage tubes out this morning. I didn't like it to much but it feels much better now that it is out. The plan is to take the second drainage tube out in two days. They will then do a CT scan Monday or Tuesday to see if the circulation has picked back up. If it has I will not need a shunt. So please pray my circulation picks back up. I do not have to wear the gauze on my head anymore. This makes me very happy. You know I do not like hats anyway and the gauze was bothering me. I had an excellent PT session this morning. I picked my head all the way up two times. I also moved my right arm. They put ice on my arm to help stimulate the muscles and sure enough I moved my right elbow up. Praise God!!!! I'm not moving it all around but since I did move it this morning we know that it will come. I have minimal swelling and I'm slowly getting my strength back. I'm leaving you a picture of me that we took today. I wanted everyone to see how GREAT I look!!!! Keep praying we still have a long way to go. Oh and I have been seizure free for 3 days now!!!!!!!! God is Great!!!!

8 comments:

happy's mommy said...

LOVE!

...danielle

krseal said...

This is great news! So glad God has blessed Jadon to be doing so well. We will continue to pray for his full recovery.

Dawson said...

LOVE IT!!!

jedjakemom said...

Great news!

Sophie's Story by Elaine said...

Wow...he looks WONDERFUL!!! It's amazing how fast our kids recover :)

donna brown said...

Thank you Jesus!' that is wonderful news. Praise God! I am continuing prayers for you all!

april kinchen said...

:) this is awesome news :)
i will continue to pray for this special lil boy and his family.

Doughty said...

Very exciting and such a sweet picture!! Congrats on your progress. What a fighter!!