Jadon's Infantile Spasms Story
I created this blog so that our friends and family will be able to follow Jadon as he fights to overcome Infantile Spasms. I also hope that if anyone else is going through this, they will find this site helpful. I have posted a video of what infantile spasms look like, as well as everything we are going through. I hope by posting this I am able to get help for other children who are having these spasms. The earlier this is diagnosed the better. Feel free to leave me comments. I love to hear from you. If you have any questions just email my mommy. She likes to help people in any way she can.
Monday, January 30, 2012
So I have alot to caught you up on. First of all I'm still doing amazingly well. I'm trying to repeat everything anybody says. No I can't say all the sounds but I try so hard. I can now say 18 words. I only had 10 before surgery. My speech is just taking off which is so amazing being that we took out the part that your speech would normally come from. I did have a little set back. I started running a low grade fever Wednesday. My mommy took me to the pediatrician Thursday and she said that I had a little discoloration in my nose. She went ahead and started me on antibiotics just to be safe. Well Saturday my fever went up to 104. My mommy called my neurosurgeon in Detroit. He said that it should not have anything to do with my surgery but to follow up with my pediatrician on Monday. He also said it was safe to go ahead and give me motrin. They told us no motrin after surgery but it had been long enough. Thank God because tylenol wasn't working. My fever continued to get worse. Sunday morning it was 105.4. My mommy and daddy decided to bring me to the ER. Fever that high is very scary and it was causing me to vomit. They did lots of test on me. All the test were negative. So we ruled out RSV, pneumonia, and flu. They decided to admit me overnight for observation. They also wanted to run more test. Today we found out that I had adno virus. I have been in the hospital 3 times due to this virus. The good news about this time was I did not have any seizures. Yes 105 fever and NO seizures. I was released from the hospital this afternoon and I'm doing much better. My fever is still going up to 102 but we will take that over 105. My fever should go away by tomorrow or the next day. Thanks to everyone who prayed for me. I have some videos of me doing some amazing things that I will try to post tomorrow. It's the same ones I have on facebook but I know some of you do not facebook so I'll try to get them up. Please continue to pray for me. You know me I"m fighting hard and I'm not going to let this virus get in my way. Love you all, Jadon