I'm feeling better and getting stronger each day. Yesterday afternoon the speech therapist came in and I signed more for her. She was blowing bubbles and I wanted her to do it some more so I told her. I didn't move my right hand, I just brought my left hand over to my right. Pretty smart :) I haven't said any words yet but I will. I try to move my mouth to say the words and then I fuss because I can't do it. I will keep trying until I'm able to do it. I had another great PT/OT session today. I sat up in my bed and held my head up most of the time. The therapist is supporting my neck in this picture but I did sit up while holding up my head for a few seconds during therapy. I'm one determined little boy. I have been smiling and laughing some too. Especially for my brother Jacob. I can't wait to get home so we can play. My last drainage tube will come out tomorrow. I will then have my CT Monday. So please pray that my circulation will pick back up and I will not need a shunt. When you pray please do not forget to thank God for 0 seizures in 4 days. I could just jump up and scream as I type that. It really is amazing. Some people have been saying things such as I never knew how blessed I was until they read my story. Well I do agree, you are very blessed but I wanted you to know that we are blessed as well. You don't know how blessed my family is to have me and to be able to see God work. I have been their greatest blessing even though this is very hard. I have made each and every one of them a better person. Please continue to pray for me and I love you all very much!! Jadon
Jadon's Infantile Spasms Story
I created this blog so that our friends and family will be able to follow Jadon as he fights to overcome Infantile Spasms. I also hope that if anyone else is going through this, they will find this site helpful. I have posted a video of what infantile spasms look like, as well as everything we are going through. I hope by posting this I am able to get help for other children who are having these spasms. The earlier this is diagnosed the better. Feel free to leave me comments. I love to hear from you. If you have any questions just email my mommy. She likes to help people in any way she can.