It's been a really long night. I'm very agitated and have anxiety when they come in the room. My mommy and daddy stayed with me until about 12:00 then my daddy stayed the rest of the night. My aunt Mendy came about 6 and then my mommy came back around 7:30. I'm still nauseated. I'm also still mad that no one can hold me. I'm moving out of ICU today. When we get to the other room my mommy will be able to hold me. All of my seizures are coming from my left side still. This is great news. I'm having lots of seizures. Some are due to the trama and others bc I didn't have any medicine yesterday. I'm back on my Meds so hopefully they will get better. We still do not have any results yet. All we know is that I'm spiking a whole lot on top of the 150-200 seizures we were seeing at home. We have to get these seizures to stop. They said that they are shooting over to my right side which has to be stopped. Please continue to pray. I have to be honest and tell you this is horrible. Yes God is giving us the strength to get through it but it feels like we are in a bad dream. I will leave you with some good news. First they said my swelling looks great. Not too much. Tomorrow will be the peak of the swelling. Next, our neurologist is on call this weekend at home and here in Detroit. Dr. C(neuro here) said not good for me but good for you. Lol. He said he is only on call ever 7 weeks. To me it's just another sign that God is taking care of me. Love you all.
I will stay strong. I will fight. I will win.
Jadon's Infantile Spasms Story
I created this blog so that our friends and family will be able to follow Jadon as he fights to overcome Infantile Spasms. I also hope that if anyone else is going through this, they will find this site helpful. I have posted a video of what infantile spasms look like, as well as everything we are going through. I hope by posting this I am able to get help for other children who are having these spasms. The earlier this is diagnosed the better. Feel free to leave me comments. I love to hear from you. If you have any questions just email my mommy. She likes to help people in any way she can.